I had dinner last night with a long-time friend who reads my blog from time to time (Hi H.!). We hadn’t seen each other for months, so had a lot of catching up to do. When I told him about some unpleasantness I’ve been dealing with, he expressed surprise, and commented that from reading my blog, he’d figured I was blissfully happy in all aspects of my life these days.
And I am very, very happy in many respects. Living in Boulder and marrying my sweetheart and planning a wonderful wedding and a fabulous honeymoon in Italy and learning to skate ski and la dee da dee dah. Life is good. But in addition to some of the frustrations my friend and I discussed, there’s a larger issue that has been lurking in my shadow lately, and that I have so far revealed to no one but Steve.
It is this: I’m really, truly going blind. And I’m scared absolutely shitless about it.
Nothing new, you might think. Isn’t this blog ostensibly about my waning vision and whatnot? But this really is new. Because I’m really, really not seeing very well or very much, and I’m starting to think in concrete terms about learning how to function as a blind person. Should I start carrying a cane, at least at night? Perhaps a dog would be a better approach for me? Will I relatively soon be needing special-print materials? Special lighting inside and out? To learn Braille, or voice-recognition software? And in the not-so-far-back of my mind I wonder, how will I continue to live the active lifestyle I have so obstinately cultivated? And perhaps more troubling, how the hell will I (theoretically, someday, maybe) be able to parent like this?
These are all topics I’ve thought about - and broached en blog - before, but they feel much more tangible, and imminent, and terrifying right now. I’m not at all ready for blindness, not ready to self-identify as blind, and not ready to be visibly identifiable as visually impaired. Yet even the safe and familiar spaces of my own home are becoming increasingly challenging to navigate, and I’m having an ever-tougher time laughing off the frequent shoulder-to-door-jamb collisions and knocked-over glasses.
My fear and sadness at all of this has left me moody, irritable, insecure, and unpredictable. I’ve taken a lot of that out on Steve, who somehow continues to love me and remains willing to stand by me through it all. But I can’t continue to dump all the pain on his sturdy shoulders. So here it is.
I’m turning off the comments to this post, because I’m not quite capable of having an actual conversation about this without breaking down. Could you, maybe, instead of commenting, consider clicking on the link at the top of my blog (or going straight to www.blindness.org) and making a donation to the Foundation Fighting Blindness? Because you know, if a cure/treatment/prosthesis/smallrayofhope were to beat out my eyes, it would really rock my world.