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March 26, 2007

Reassurance.

My recent post detailing my fears about parenting with vision loss brought a great many readers out of lurkdom. I received many e-mails and comments from people with blindness who are happily and successfully parenting, from people better connected to disability resources than I am, from women dealing with similar vision loss issues who are not yet, but hope to be, moms, and from sighted parents offering tips and encouragement.

Thank you all so, so much. By the time I finished reading everything you sent me or linked me to, I was having trouble remembering why I was so freaked about this issue.

That reading, and considerable further obsessing musing on the subject of "parenting blindly" (as one correspondent so aptly put it), led me to a few conclusions. First, parenting is scary, and every parent has his or her own set of demons to confront and obstacles to overcome. Second, I've been adapting to the realities of my vision loss for decades, now, and have managed to make all sorts of different situations work just fine for me. There's no reason to think the same won't be true of parenthood, or that trial-and-error, creativity, and flexibility won't lead us to a successful system. And third, I'm not in this alone. I have a wonderful, supportive partner who not only has perfect hearing and vision, but also manages to stay much, much calmer than I do in all situations not involving Wisconsin sports teams. I also have my amazing parents just across town, ready, willing, and able to provide all sorts of much-needed assistance. In short, I'm feeling optimistic, and lucky.

I also anticipate that there will be some scary moments along the way, not just of the usual new-parent variety, but specifically associated with my vision and/or my hearing. I'm trying to make peace with them in advance, so that they don't undermine my confidence in my own parenting abilities at the most vulnerable (that is, uncertain and sleep-deprived) moments. I'll try to chronicle them here, for personal posterity and in case they might give comfort to some other visually impaired mom or dad down the road.

For now, Crusher continues to thrive. I'm still experiencing the Bizarro Pregnancy, in which my second trimester has brought continual nausea and fatigue, after an easy-peasy first tri. However, I'm still having a fairly easy time of it, and my doctor has diagnosed mild anemia that may be the source of the unpleasantness. We saw the critter again on Friday, jiving around and taking great big gulps of amniotic fluid.

Here are a couple of admittedly hard-to-see photos. I think the kid has my chin, but can't tell yet whether it has my (long, thin, crossed) toes.

Crusher_ultrasounds_003

Crusher_ultrasounds_004

March 10, 2007

My own *@%# fault.

I got to Kansas City on a Friday Sunday, for an appellate argument on Monday morning. The circuit staff, as usual, was totally on top of my accommodation needs, and had the FM amplification system all rigged up for me. We tested it, it worked, end of story.

Except that when the judges came out of the robing room and called my case, first on the docket, I realized that I had no amplification. I asked the presiding judge for a moment to figure out the problem, and he moved the microphones closer to the judges. At first, I thought this solved the problem. In fact, I could hear the judges, though not nearly as well as amplified-usual. Not wanting to delay the proceedings further, I began my argument.

What followed was not even close to my best performance, and may well have been my worst. Straining to hear always makes me tense and awkward, and my answers seemed rambly and unfocused to me, not sharp and directly responsive, which Is what I strive for. The judges were very kind about repeating themselves when I requested, and seemed to be smiling at me throughout the argument. Still, I sat down feeling awful about my presentation, and wishing I could call a mulligan.

As soon as my opponent began arguing, I realized the problem - somehow, I'd dislodged the headset ever-so-slightly from the receiver. I clicked them together tightly, and voila! I could hear. Kicking myself inside for the error, I at least was able to hear all of my opposing counsel's points, and to enjoy the mincemeat the judges of made of them. And during my brief rebuttal, I was able to give direct and focused answers to the judges' final few questions.

I learned two lessons from this stressful experience: One, always double-check the equipment; and two, I'm hearing dramatically better un-amplified than I ever could have imagined. Pre-cochlear implant, I would never have been able to hear even a fraction of what I did on Monday without FM or infrared amplification. The very fact that I wasn't sure, for much of the argument, whether the system was working, but not quite right, or wasn't on at all, was a testament to the CI's success.

On that note, I'm thrilled to report that at yesterday's 9-month appointment, I scored 100% on the sentence recognition tests both in quiet and with background noise. My biggest gain over the last few months has been in louder background-noise situations - in my last round of testing, I got 49% of the sentences right when the speaker's voice was only 5 decibels louder than the background noise, and yesterday, I got 76% correct. That's a significant improvement, and a spectacular result, according to my audiologist.

March 03, 2007

Selling out.

As I hope you've noticed, I've tweaked things a bit around here. I'm no web designer, so I can't offer you snazzy mastheads or fancy formatting, but it seemed high time to mix things up just a little.

In addition to adding the new format and photo, I realized that many of the links I'd provided here are to blogs I don't read anymore, or that no longer exist. I eliminated my typelists, figuring that those of you who are heavy blog-followers already have your favorites in a consolidator subscription, and the rest of you are related to me.

The most significant change, from my perspective, is that I've joined up with Google's AdSense to provide advertising space over in the upper right-hand corner of blind insight. Any time someone clicks through from this blog to those ads, I get a little money (it seems to range from about 50 cents to a buck a click, although not all the click-throughs generate revenue for me). I'm not counting on the blog to fund Crusher's college education, but I'm hoping to at least cover my annual typepad fees this way.

You can now download the Mozilla Firefox web browser, with the Google toolbar, from the right side of my blog. I've also given you a Google search window to use. And if you want to try AdSense on your own website, there's a link over there on the right for that, too.

I hope you'll take a look at these new features, and let me know if the ads appear to have any relevance to the content of my posts. And if you have strong feelings about any of the changes I've made, the comments are open for business.

Crusher is a teetotaller.

Cautioned by the growing body of medical research on the effects of alcohol on fetal development, and the continuing uncertainty about how much alcohol it takes to produce negative effects, I abstained entirely from the Demon Rum during my first trimester. But at 13 weeks, we were enjoying a wonderful Chinese New Year celebration with friends, and I decided to usher in the second tri with a half-glass of wine.

It tasted delicious, as did the hot-pot. But later that night, I experienced my very first puke of the pregnancy.

I chalked it up to excessive protein consumption, since my gestational diet has consisted mostly of carbs, cheese, and avocadoes. The following week, after many hours of riding in the backseat of a small car en route to Northern Wisconsin, I puked again, though rather less intensely.

Last night, when Sasha and I met up after work, I was very much looking forward to a little vino. I asked the bartender for something smooth and not-too-full-bodied, and he complied with a delicious red, the provenance of which I didn't quite catch. The wine was soothing and delicious, and it felt wonderful to sit and chat and sip. When we moved on to dinner, I made a point of not overeating, and kept the protein consumption to a minimum.

To no avail. I barely made it home in time to vomit violently and copiously.

I'm not a big drinker even when I'm not growing a person, so it may be that my already low alcohol tolerance has dwindled to zero over the past fifteen weeks. But I'm thinking that Crusher is sending a message - lay off the sauce, mommy.

February 28, 2007

What's keeping me awake at night.

Progress in my uterus continues apace, as I remain exceedingly grateful for this relatively uneventful and comfortable pregnancy. Above the neck, however, things are anything but tranquil.

I've been spending a lot of time wondering how in the world we're going to make this work. I'm sure we can figure out the child-care situation and the work-family balance thing, although it will mean fewer impulsive gear purchases, exotic vacations, and nice restaurant dinners for a while. I'm also sure - or at least reasonably confident - that we will find ways to maintain our beloved athletic pursuits, spend time with our kid-less friends, and even relax on the couch from time to time. Perhaps I'm delusional, but this part of adapting to Life With Baby doesn't worry me so much.

But trying to figure out how we're going to manage all of this with only one parent who drives? And wondering how I'm going to avoid hurting my kid due to my vision loss (given how frequently I injure myself, however inconsequentially)? That has me scared shitless.

My hearing isn't troubling me. The CI has brought me almost to a normal level of hearing, and between that and the ready availability of lighted and vibrating alert systems, I don't expect my hearing loss to pose much of a hurdle in parenting. True, I can't understand much of what your average toddler says, but can anyone?

My vision, though? Hoo-boy. We're investigating nanny versus day-care options, and trying to weigh the dollar differences against the reality that only one of us will be able to do pick-ups and drop-offs in most circumstances. Not to mention transportation to doctor's appointments, play-dates, and kiddie activities. The bus system in Boulder is great, but it only goes so far, and I'm not entirely sure it's safe to take a newborn in a baby-bucket on the bus (anyone know?). Cabs will provide another option from time to time, but are available in these parts only on a slow, inconvenient, and expensive call-in basis (and, again, we have the safety issue).

And we haven't even begun to explore how we can protect the baby from any harm that might come to it because its mother walks into and trips over stuff a lot. I have no idea how I'm going to handle a stroller in crowded conditions, or how I'm going to walk home safely with the baby after dark, particularly given that I can only make it from the bike path to my front door by walking part-way in the street and doing my damndest not to trip over the branches, garbage cans, and other obstacles that frequently mar the sidewalk on our block. And how will I handle night-time feedings without having to turn on the lights to safely handle the baby, thereby waking the poor thing and probably destroying Steve's and my chances of getting a bit of sleep ourselves?

Part of me is sure we'll figure all of this out, through trial and (hopefully not too damaging) error. Part of me thinks I'm making too much of my disability's impact on parenting. But another part of me is filled with fear and uncertainty.

I guess I need to investigate resources for new parents with disabilities. I do hope that someone out there has not only dealt with the issues that worry me, but has memorialized their experiences and solutions in print or in cyberspace.

February 11, 2007

The big reveal.

The real reason I've been such a negligent blogger is that I wasn't ready to share the thing that has been dominating much of my brain space for the past few months. The time feels right, now, to do so.

Assuming that all continues to go well, somewhere around August 26, Steve and I will become parents. That's right - we're having a baby!

Our road to parenthood has been marred by a few bumps and potholes, including an early miscarriage last spring and what turned out to be a readily fixable issue that was preventing a subsequent "sticky" pregnancy. As these things go, though, we have been fairly fortunate.

While we're on the subject of luck, I've been blessed thus far with a relatively easy first trimester, free of puking and marked by only a few truly unpleasant days of nausea and ickiness. We can only hope that Crusher* goes as easy on us in its first three months on the outside as it has during the three it has spent inside.

I've been staying fairly active, with swimming and cross-country skiing and cycling on the trainer and doing some light weights/pilates.  Even on the days when I feel worst, I'm trying to get some light exercise, since it seems to alleviate my nausea far more effectively than saltines or ginger tea.

On Friday, we saw Crusher doing its own little workout, waving its little arms and legs about in an adorable baby jive. Clearly, the kid is a natural athlete, just like its daddy, and has inherited the musical genes from its mommy's side that must have skipped a generation.

Plenty more on this subject to follow, I'm sure. Right now, I'm feeling a tad vulnerable about revealing the state of my uterus to cyberspace.

*Steve bestowed this cute and cuddly utero-name on the critter very early in its gestation. I like its gender-neutrality (no, we are not planning to find out the sex before the birth), and the sense of invincibility it projects.

January 28, 2007

W(tf?!)

Chicago was lovely, thank you. It is such an engaging and interesting city, full of good food, neat neighborhoods, and unbridled Bears Fever. Alas, I returned to piles and chaos at work and am only just surfacing.

What was not so lovely, however, was the W Lakeshore Hotel. I've stayed at Ws a few times in the past, and have enjoyed them very much. Plush room decor, comfy beds, and lovely spa products in the bathrooms make for a delightful stay. This particular link in the chain promised lake views, a fully equipped exercise room, and superlative attention to detail.

Apparently, though, the details to which the W attended did not extend to such niceties as ensuring that guests might be able to see and hear and navigate during their stays at the hotel. I should pause here to state, for the record, that the staff was uniformly wonderful, and not one of my many complaints involved an interpersonal exchange. Nevertheless, the professional and courteous staff could do little to overcome the logistical hurdles the W has thrown in their - and our - paths.

I knew something was wrong the moment I arrived, when I couldn't figure out how to get from the cab to the lobby. The doors were set at an odd angle, in a wall of glass, and it was only after nearly walking into a pane or two that I found the ones that opened.

I passed through a second set of doors into . . . darkness. And Very Loud Music. I looked around for my colleague, who had proceeded to the elevators before he realized that I was lost in the dark and afraid to move. He backtracked to rescue me, and guided me to the elevator. Where we discovered . . . darkness. And Even Louder Music.

Upon disembarking from the elevator, we found ourselves in more darkness. A hallway, to be precise, illuminated only by dim, red lights mounted along the walls. Somehow, we found our meeting room, and stumbled into the blessed light. I did not make much of a first impression on my fellow faculty members, I'm afraid, given that I was blinking and shaking and doing my level best to reorient myself.

Eventually, I had to return to Satan's Hotel Lobby to check myself in. I mentioned to the receptionist that the loudness and darkness were rather extreme, and made it very challenging to navigate for a person with visual and hearing disabilities, such as myself. She was kind and apologetic. Whatever.

I found my way back into the Discovator, which took me to my red-lit floor. I felt my way along the hall to my room, fumbled with my key, and entered. More fumbling led me to a light switch, which provided barely enough useful light for me to move into the main portion of the room. The furnishings were quite nice, in typical W fashion, and the bathroom did, indeed, offer some lovely lemon-sage spa products. What the room lacked, however, was light. A condition exacerbated by the fact that three of the scant available fixtures had burnt-out bulbs.

I found the phone, and dialed the front desk. Nothing happened. I tried the room service line. Nothing. I listened again, and realized I had no dial tone. So there I was, stuck in a dark room, with a non-functional phone, and a tummy crying out for dinner (it was after 9:00 p.m., by the way).

Taking a deep breath and girding my loins for a challenge, I made my way back into the hall. It took me three tries to find the elevators, and then two elevators passed before I could figure out which one was open and descending. When I managed to get myself in the elevator, I was again bombarded by techno music. Not what my mood dictated, I assure you.

Back at the front desk, the ever-courteous clerk was hospitable and apologetic. She promised to have lights and phone fixed immediately, and placed my room service order for me. She also paid for my dinner, which I didn't realize until it came (upon which discovery, I promptly regretted ordering only the paltry cheese plate).

The next morning, I discovered that the light over the shower didn't work. I also realized that the light over the bathroom mirror worked, but created so much glare that I could barely see myself. Hoping for the best, makeup-wise, I stepped out into the hallway, which apparently remained dark and red-lit at all hours, to ensure that guests didn't miss the disco effect. (Later that day, the hotel staff fixed my shower light. It promptly died again, and required another fix. That one worked, just in time for me to check out. The promised additional room lighting never arrived.)

The elevators made no allowance for sleepiness. Even at 7:00 in the morning, they greeted me with an ear-splitting techno beat and lighting so dim that guests regularly bumped into one another as they entered what appeared to be an empty compartment.

The "upside" of these auditory and visual annoyances was that it irked everyone. At first, I felt like an uptight loser, who couldn't enjoy a hotel with a bit of a punk-rock attitude. It only took me a day to realize that none of the other guests were feeling it, either, and complaining about the hotel occupied quite a bit of our break time during the conference. Somehow, knowing that it wasn't just me, with my lousy eyes and ears, made it all easier to bear.

In addition to the lighting issues and the incessant music, we had to contend with meeting rooms that were either freezing cold or sauna hot, excessive charges for just about everything, and really crummy coffee. The fully equipped exercise room was nicely outfitted, but so dimly lit that I was afraid to move, for fear of tripping over a bench or machine.

But, again, the staff was delightful. Perhaps they stay chipper due to the sheer entertainment value of watching people flail around in their infernal hotel.

January 17, 2007

Big Shoulders.

Later today, I'm heading for the Windy (and hopefully slightly warmer) City. Given my penchant for travel, it seems somewhat astounding that this will be the very first time I have ever set foot in Chicago, outside of O'Hare Airport. While I know well how to make the mad dash between concourses C and D with barely 15 minutes to spare between flights, I am eager to discover Chicago's other reputed pleasures.

I know Chicago isn't exactly the Number One January Travel Destination in the country, but I'm lucky enough to be serving on the faculty at an appellate defender training conference there. I'm expecting to learn as much as I teach, if not more, because my fellow faculty members are an impressively experienced bunch. Most of them not only have been handling criminal appeals for decades, but also have taught at this conference for many years.

The trip also gives me a welcome opportunity to see some dear friends, eat some tasty food, and hopefully sleep in a room heated above 55 degrees. (Our furnace is sort of functioning, but will not be repaired until next week.)

See you next week!

January 15, 2007

Brrr.....

Please excuse any typos in this post. They result from the fact that I'm writing with icy blue fingers, courtesy of subzero outside temperatures and a heating system that missed its old friends, the fridge and the water heater. What was it in my last post? Something about large, unforeseen expenses? Um, yeah.

Thinking positively, however, once the furnace is restored to proper working condition, there shouldn't be any major household appliances left to fail, at least for a while. Sure, there's the oven with its inconsistent heating, and the dishwasher that doesn't automatically move from the first cycle setting to the second, but those have existed, unchanged, since we bought this money pit two-plus years ago.

I suppose these are the inevitable joys of homeownership, but do they have to be quite so joyful, all at once?

January 09, 2007

Inauspicious beginnings.

Steve and I seem to have escaped New Year's Day unscathed, although just a few days into the year, we've already had to purchase a new water heater. Large, unforseen expenses aside, I'm considering our longstanding 1/1 Curse vanquished, at least for now.

On the work front, however, my year is commencing poorly. My 2006 record was superb, as I batted something like .600 for the season. In habeas, as in baseball, that's practically unheard-of.

2007, on the other hand, is thus far striking me out. On Friday, the Supreme Court declined to hear a case I felt was truly cert-worthy. I'd held out a shred of hope that the Court might agree, since they'd directed the government to respond, but alas, no. This is likely the end of the road for my client's efforts to overturn a conviction of which he is legally innocent (but, according to the courts, not innocent enough. Or something).

And today, the Tenth Circuit affirmed the conviction of another client, agreeing with me that his constitutional rights were violated, but deeming the egregious error "harmless." I find little solace in the Court's decision, which tracks my briefs and arguments for 24 pages and then diverges, in the only way that matters, for the final 2. I'm not sure yet how to break this devastating news to my client, who was sentenced to life without parole at the ripe old age of 16.

These kinds of losses are routine, predictable, but nevertheless crushing. Per office protocol, I'll allow myself 24 hours to wallow in my righteous indignation, anger, frustration, and sadness. Beyond that, lies burnout.

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